Heart Journey

  Well the date has been set for my OHS (Open Heart Surgery).  Looks like I will be going in on Janutary 17th.  It does not escape me what day that is.  Dr. Martin Luther King Day is that day. I have always loved what Dr. King believed in, fought for of , and lived.  Perhaps it is a good sign my surgery is on this day.  Perhaps it is just coincidence.  Either way, I have a calmer heart knowing it is on this date of all dates. It seems more real now.  This is actually happening.  I have a little over 2 months to prepare.  I’m excited that I’ll have this surgery and feel better.  I’m so tired of feeling under the weather all the time and feeling exhausted all the time.  I’m especially tired of feeling my heart get worse. There’s also the immense fear that always lingers with me.  Sometimes it tries to consume me at times.  As I write this, I am sitting in my favorite hotel in the Cities (Minneapolis).  I just had t...

 I was born November 1976.  It didn’t take very long for doctors to discover there was something wrong with my heart.  Months into life, it was discovered I had a rare heart defect called Trunkus Arteriosis.   Feel free to google it if interested.   In 1976 this was one of the many heart defects that doctors just didn’t know how to fix.  Even the best doctors in the world just did what they could to buy some time for the little heart warriors until science gave them new tools to fix what was wrong. Doctors opened me up at a few months old, did what they could, closed me up and handed me back to my parents with the advise to love me as I probably wouldn’t see my first birthday. Doing some research…in 1976, there were 11 known cases of Trunkus.  Four of us lived.  I’d love to know of us 4, how many are still alive today. I had my second surgery in 1986.  Surgery was done two days prior to The This would be my corrective surgery.  Basically...

Welcome to my blog.  This blog is for me to write about my upcoming 5th open heart surgery in January.  Please be prepared, sometimes this blog will be raw and will talk about uncomfortable things like death.  Hopefully many times it will be funny and informative. Enjoy!😊